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Kenny Deal visits with his sister, Pat Trotter, in her home in the Massaponax area.
ROBERT A. MARTIN/THE FREE LANCE-STAR

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Disabled Residents Face Housing Shortage

Disabled man struggles to find place to live


Date published: 5/15/2007

By Flowers Umble

BY AMY FLOWERS UMBLE

After decades apart from her brother, Pat Trotter was surprised to discover he lived in an apartment by himself in 2003.

Kenny Deal has about six days' worth of school, can't read and has an IQ of 47.

He can print his name--a feat he takes great pride in.

"He'll sign his name on anything," Trotter said.

And in 1999, he signed his name on a lease of a Culpeper County one-bedroom apartment, which he got with help from a Section 8 housing voucher.

Trotter came back to Virginia after living across the country for years. She found her brother's apartment, a block off Main Street in Culpeper, and hoped for a joyful reunion with him. But when he opened the door, the smell took her breath away.

The bathtub was black, and a colony of roaches had moved in to Deal's bed.

His cooking skills consist of using a microwave on highA power only because he can't read the instructions on the back of a box.

But Trotter was even more horrified to see neighbors in and out of Deal's apartment, stopping by for money, food, sodas and favors. Deal said "yes" to any request.

When Trotter asked why, he said, "They're my friends."

He sees everyone as an immediate ally, Trotter said. "He will give away his last dime if someone asks for it."

Deal worked part time, doing odd jobs at a nearby park. He showed up at work to find hand-drawn pictures of his chores, so he'd know what to do that day. Deal said he loved his job.

When Trotter moved back to Virginia, she became one of thousands of state residents trying to navigate the issues of long-term care for the developmentally disabled. She tried to help her brother deal with day-to-day living and the more complicated issues of finding a permanent home.

She immediately threw out his furniture and the roaches living in it. She moved her brother to a new apartment and hired a cleaning crew. She lives in Spotsylvania County and drove 30 minutes twice a week to help him with laundry, groceries and errands.


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Group home shortage also leads to waits

This summer, the wait for Mental Retardation Medicaid Waivers will be over for 27 people on the urgent list.

The Rappahannock Area Community Services Board just learned it will get that many waivers this year, up from six last year. There are 160 people on the RACSB's urgent waiting list right now.

If Kenny Deal is one of the lucky ones, he still won't be out of the woods as far as his living situation goes.

His sister Pat Trotter assumes he would then go on a list for a group home. The RACSB opens one group home a year. Each one houses about five or six people. The waiting list for these homes usually reaches about 150. And it usually stays there. As soon as a home opens, five or six more people always seem to join the list.

Deal could live in an apartment, as he did in Culpeper, but with more supervision. The waiver would pay for additional supports and for daily care. But he would need Section 8 assistance to afford the apartment, and that also has a waiting list.

--Amy Flowers Umble



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Date published: 5/15/2007


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Thia story is so sad. (posted by patrick4hp , Sep. 25, 2007 2:41 pm)   
You always here people say that only people who cannot fend for themselves should get help from society. But this story points out how hard finding that help can be. For a society to spend Billions in Iraq, and have this happen is really disturbing. But, people talk a good line about taking care of the disabled, but when push comes to shove, they want their tax money for war instead of taking care of the living. I know, I have a disabled partner, the maze to find help was most worrying.

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