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Chanelle Felder was glad to learn she had a brain tumor; her debilitating symptoms had her thinking she'd gone mad.

Chanelle Felder changes from ballet shoes to her pointe shoes between dances. The woman is recovering from Cushing's disease.

Alycia Shaffer (seated , left) watches over a ballet class at Amyclae Dance Studio where Chanelle Felder (foreground, right) is practicing. A brain tumor left Chanelle barely able to walk and speak.

Chanelle Felder (second from right) chats with classmates in her modern dance class at Amyclae Dance Studio. Chanelle spends countless hours in dance classes.

Chanelle Felder (center) participates in a dance class at Amyclae Dance Studio in Stafford with Hope Janowsky (left) and Erin Bradley.

Back on her feet after brain tumor

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After a brain tumor made it difficult for her to walk, a Stafford County student discovers the healing power of dance

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Date published: 9/23/2008

By CATHY DYSON

Chanelle Felder doesn't hide her battle scars when she's dancing with slender girls built like ballerinas.

She's too busy enjoying herself--and being grateful for all her experiences, including weird side effects from a rare disease that caused weight gain and hair loss, numbness in her feet and stretch marks on her shoulders.

"A lot of this, I would not change one bit," said the bubbly 18-year-old, who talks a mile a minute as she tries to get across all the thoughts running through her mind.

"If I hadn't gone through this, would I have met the people I've met? The doctors who were so amazing, even the people who wheeled me into the operating room? Would I have made the connections I've made? No," she said. "Anybody can have a great high-school experience, but would I really appreciate the stuff I have everyday if I hadn't gone through something? Not that I recommend people go through a brain tumor."

Chanelle was a 16-year-old junior at Mountain View High School when doctors thought a thyroid condition caused her extreme mood swings.

But her problems went far beyond crying for no reason. Her hair fell out in clumps and acne dotted her face. Pockets of flesh formed in her stomach and on her back, a condition she says is known by the lovely name "buffalo hump."

She gained 40 pounds in a few months. When she performed at the school's "Idol" competition in March 2007, classmates whispered she looked like she was pregnant.

The girl who had been a model, dancer and cheerleader--active in programs since preschool--had high blood pressure and trouble walking.

She couldn't put sentences together, much less express herself through poetry or creative writing, as she'd always done.

"I literally wanted to drop out of high school, and that was completely not me," Chanelle said.

The daughter of Rufus and Cathy Felder eventually learned she had Cushing's disease, a rare condition caused by a buildup of cortisol, a stress hormone.

A tumor right between her eyes, on her pituitary gland, caused the problems.

As devastating as the prospect of brain surgery last September was, Chanelle was glad to know what was wreaking havoc on her body.


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HER FUTURE Chanelle Felder, 18, plans to rebuild her strength this year, then attend community college for two years. After that, she'd like to follow in the footsteps of her father and be a social worker.

Rufus Felder spent 20 years in the Marine Corps, then earned a degree from Virginia Commonwealth University. He works in Washington with substance abusers.

Chanelle see social work as another way of expressing herself and helping others.

"Poetry is emotion, dance is emotion, social work is emotion," she said.

HER ADVICE Chanelle Felder struggled with various symptoms for eight months before she was diagnosed with Cushing's disease, a rare condition that affects 10 to 15 of every million people. Only 10 percent of its victims are children or adolescents; the rest are ages 20 to 50.

Chanelle kept track of her "weird symptoms," which varied from physical problems, such as numbness in her hands and feet and weight gain, to emotional issues, such as crying uncontrollably and feeling panicked. She suggests that others with medical problems do the same.

"I thank God every day for doctors, but they're not gods, they're humans," she said. "You know your body better than anyone else. Listen to your intuitions about what's wrong with you."


Date published: 9/23/2008


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Yea for Chanelle! (posted by JillyPepper , Sep. 23, 2008 10:45 am)   
Your happiness is infectious. Thank you so much for sharing your story with the FLS. I had a friend who died a few years ago from a brain tumor. Unfortunately, her treatment here in Mexico left much to be desired. Keep up your beautiful spirit!

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